Pfizer Inc., the Lupus Research Alliance and Tata Consultancy Services Ltd. jointly developed a new mobile app, using the Apple ResearchKit platform and building on existing research tools that have been validated in lupus.
“This is an important step in demonstrating that mobile technology can improve how and what patients report to their care teams about subjective but serious symptoms of lupus, such as debilitating fatigue,” said Kenneth M. Farber, co-CEO and co-President of the Lupus Research Alliance. “This app may enable more frequent and consistent reporting from patients, thus providing better information for care teams and empowering patients to take a larger role in developing future therapies.”
Patients enrolled in VALUE will use an iPhone with the app installed, submitting self-assessments of symptoms over a two-month period. This data will be compared with standard questionnaire data collected by traditional methods such as written surveys in physicians’ offices. VALUE will help determine if information reported by patients through the new app is sufficiently complete and accurate to be used in future studies of new lupus therapies.
Virtual PV has developed a similar app for patients and HCPs to report adverse events. AE Reporter has been validated to industry standards and can easily be adapted to enable patients to report symptoms relating to their condition. For more information contact us.